Медицинские вопросы и проблемы подростков, больных муковисцидозом

Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Child Adolesc Psychiatr Clin N Am 2010; 19:263-83

438

Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42

439

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

440

Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42

441

Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3

442

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

443

Graetz B, Shute R, Sawyer S. An Australian study of adolescents with cystic fibrosis: perceived supportive and nonsupportive behaviours from families and friends and psychological adjustment. J Adolesc Health 2000; 26:64-9

444

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

445

Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70

446

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

447

lies N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Commun 2010; 18:21-9

448

DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5

449

Herzer M, Umfress K, Aljadeff G et al. Interactions with parents and friends among chronically ill children: examining social networks. J Dev Behav Pediatr 2009; 30:499-508

450

DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5

451

Twyman KA, Saylor CF, Saia D et al. Bullying and ostracism experiences in children with special health care needs. J Dev Behav Pediatr 2010; 31:1-8

452

Herzer M, Umfress K, Aljadeff G et al. Interactions with parents and friends among chronically ill children: examining social networks. J Dev Behav Pediatr 2009; 30:499-508

453

Steinfield C, Ellison NB, Lampe С Social capital and college students' use of online social network sites. J Appl Dev Psychol 2008; 29:434-45

454

Olsson CA, Boyce MF, Toumbourou JW, Sawyer S. The role of peer support in facilitating psychological adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005; 10:78-87

455

Besier T, Goldbeck L. Growing up with cystic fibrosis: achievement, life satisfaction and mental health. Qual Life Res 2012. (In press) DOI: 10.1007/ s11136-011-0096-0

456

Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33

457

Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3

458

Sawyer S, Drew S, Yeo MS, Britto MT Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007; 369:1481-9

459

Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3

460

Demars N, Uluer A, Sawicki GS. Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil 2011; 33:922-6

461

Casier A, Goubert L, Theunis M et al. Acceptance and well-being in adolescents and young adults with cystic fibrosis: a prospective study. J Pediatr Psychol 2011; 36:476-87

462

Grieve JA, Tluczek A, Racine-Gilles CN, Laxova A, Albers AA, Farrell PM. Associations between academic achievement and psychological variables in adolescent with cystic fibrosis. J Sch Health 2011; 81713-20

463

Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33

464

Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3

465

Laborde-Casterot H, Donnay C, Chapron J et al. Employment and work disability in adults with cystic fibrosis. J Cyst Fibres 2012; 11:137-43

466

JK. Tele-What? It's time to re-think the industry's terms. Telehealth World 2008:(7)

467

Wuorenma JK. Tele-What? It's time to re-think the industry's terms. Telehealth World 2008:(7)

468

Hardisty AR, Peirce SC, Preece A et al. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. Int J Med Inform 2011; 80734-44

469

Coleman MT, Newton KS. Supporting self-management in patients with chronic illness. Am Fam Physician 2005;72:1503-10

470

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

471

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

472

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

473

Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33

474

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

475

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

476

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

477

Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33

478

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

479

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

480

Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32

481

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

482

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

483

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

484

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

485

Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33

486

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

487

Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66

488

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

489

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

490

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

491

Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23 Suppl 1:S21-7

492

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

493

Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7

494

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

495

Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70

496

Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66

497

Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7

498

Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23Suppl 1:S21-7

499

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

500

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

501

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

502

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

503

Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18:515-22

504

Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010; 45:450-8

505

Giedd JN, Blumenthal J, Jeffries NO et al. Brain development during childhood and adolescence: a longitudinal MRI study. Nat Neurosci 1999;2:861-3

506

Vandenbranden SL, McMullen A, Schechter MS et al. Lung function decline from adolescence to young adulthood in cystic fibrosis. Pediatr Pulmonol 2012;47:135-43

507

Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33

508

Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: developmental issues. Arch Dis Child 2004; 89:938-42

509

Modi AC, Driscoll KA, Montag-Leifling K, Acton JD. Screening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol 2011;46:153-9

510

Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Child Adolesc Psychiatr Clin N Am 2010; 19:263-83

511

Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33

512

Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42

513

George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32

514

Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3

515

McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8

516

Graetz B, Shute R, Sawyer S. An Australian study of adolescents with cystic fibrosis: perceived supportive and nonsupportive behaviours from families and friends and psychological adjustment. J Adolesc Health 2000; 26:64-9

517

Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9

518

Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70

519

lies N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Commun 2010; 18:21-9

520

DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5

521

DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5

522

Twyman KA, Saylor CF, Saia D et al. Bullying and ostracism experiences in children with special health care needs. J Dev Behav Pediatr 2010; 31:1-8

523

Steinfield C, Ellison NB, Lampe С Social capital and college students' use of online social network sites. J Appl Dev Psychol 2008; 29:434-45

524

Olsson CA, Boyce MF, Toumbourou JW, Sawyer S. The role of peer support in facilitating psychological adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005; 10:78-87

525

Besier T, Goldbeck L. Growing up with cystic fibrosis: achievement, life satisfaction and mental health. Qual Life Res 2012. (In press) DOI: 10.1007/ s11136-011-0096-0

526

Sawyer S, Drew S, Yeo MS, Britto MT Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007; 369:1481-9

527

Demars N, Uluer A, Sawicki GS. Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil 2011; 33:922-6

528

Casier A, Goubert L, Theunis M et al. Acceptance and well-being in adolescents and young adults with cystic fibrosis: a prospective study. J Pediatr Psychol 2011; 36:476-87

529

Grieve JA, Tluczek A, Racine-Gilles CN, Laxova A, Albers AA, Farrell PM. Associations between academic achievement and psychological variables in adolescent with cystic fibrosis. J Sch Health 2011; 81713-20

530

Grieve JA, Tluczek A, Racine-Gilles CN, Laxova A, Albers AA, Farrell PM. Associations between academic achievement and psychological variables in adolescent with cystic fibrosis. J Sch Health 2011; 81713-20

531

Demars N, Uluer A, Sawicki GS. Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil 2011; 33:922-6

532

Laborde-Casterot H, Donnay C, Chapron J et al. Employment and work disability in adults with cystic fibrosis. J Cyst Fibres 2012; 11:137-43

533

Laborde-Casterot H, Donnay C, Chapron J et al. Employment and work disability in adults with cystic fibrosis. J Cyst Fibres 2012; 11:137-43

534

Wuorenma JK. Tele-What? It's time to re-think the industry's terms. Telehealth World 2008:(7)

535

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

536

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

537

Hardisty AR, Peirce SC, Preece A et al. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. Int J Med Inform 2011; 80734-44

538

Coleman MT, Newton KS. Supporting self-management in patients with chronic illness. Am Fam Physician 2005;72:1503-10

539

Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33

540

Hardisty AR, Peirce SC, Preece A et al. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. Int J Med Inform 2011; 80734-44

541

Hardisty AR, Peirce SC, Preece A et al. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. Int J Med Inform 2011; 80734-44

542

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

543

Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82

544

Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32

545

Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32

546

Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66

547

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

548

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

549

Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23 Suppl 1:S21-7

550

Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7

551

Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7

552

Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7

553

Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18:515-22

554

Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18:515-22

555

Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010; 45:450-8

556

Cohen-Cymberknoh M, Shoseyov D, Kerem E. Managing cystic fibrosis: strategies that increase life expectancy and improve quality of life. Am J Respir Crit Care Med 2011; 183:1463-71

557

Duff AJ, Latchford GJ. Inhaled medication and inhalation devices for lung disease in patients with cystic fibrosis: poor adherence and the need to address it. J Cyst Fibros 2010;9:455-6

558

Marciel KK, Saiman L, Quittell LM, Dawkins K, Quittner AL. Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives. Pediatr Pulmonol 2010; 45:157-64

559

McCormack P McNamara PS, Southern KW. A randomised controlled trial of breathing modes for adaptive aerosol delivery in children with cystic fibrosis. J Cyst Fibros 2011; 10:343-9

560

Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32

561

Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18:515-22

562

Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32

563

Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8

564

Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23 Suppl 1:S21-7

565

Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66

566

Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66