Читать книгу Медицинские вопросы и проблемы подростков, больных муковисцидозом ( Коллектив авторов) онлайн бесплатно на Bookz (13-ая страница книги)
bannerbanner
Медицинские вопросы и проблемы подростков, больных муковисцидозом
Медицинские вопросы и проблемы подростков, больных муковисцидозомПолная версия
Оценить:
Медицинские вопросы и проблемы подростков, больных муковисцидозом

4

Полная версия:

Медицинские вопросы и проблемы подростков, больных муковисцидозом

319

Balkrishnan R. The importance of medication adherence in improving chronic-disease related outcomes – what we know and what we need to further know. Med Care 2005; 43:517-20

320

Wysocki T, Harris MA, Buckloh LM et al. Randomized, controlled trial of behavioral family systems therapy for diabetes: maintenance and generalization of effects on parent-adolescent communication. Behav Ther 2008; 39:33-46

321

Savage E, Beirne PV, Chroinin MN, Duff A, Fitzgerald T, Farrell D. Self-management education for cystic fibrosis. Cochrane Database Syst Rev2011;(7):CD007641

322

Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatr Psychol 2006;31:846-58

323

McNamara PS, McCormack P McDonald AJ, Heaf L, Southern KW. Open adherence monitoring using routine data download from an adaptive aerosol delivery nebuliser in children with cystic fibrosis. J Cyst Fibros 2009; 8:258-63

324

Bernard RS, Cohen LL. Increasing adherence to cystic fibrosis treatment: a systematic review of behavioral techniques. Pediatr Pulmonol 2004;37:8-16

325

Kahana S, Drotar D, Frazier T. Metaanalysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditions. J Pediatr Psychol 2008;33:590-611

326

Drotar D. Psychological interventions in childhood chronic illness. Washington, DC: American Psychological Association, 2006

327

Wysocki T, Harris MA, Buckloh LM et al. Randomized, controlled trial of behavioral family systems therapy for diabetes: maintenance and generalization of effects on parent-adolescent communication. Behav Ther 2008; 39:33-46

328

Borus JS, Laffel L. Adherence challenges in the management of type diabetes in adolescents: prevention and intervention. Curr Opin Pediatr 2010;22:405-11

329

Quittner AL, Drotar D, levers-Landis C, Slocum N, Seidner D, Jacobsen J. Adherence to medical treatments in adolescents with cystic fibrosis: the development and evaluation of family-based interventions. In: Drotar D, ed. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions. Mahwah, USA: Lawrence Erlbaum Associates, 2000: 383-407

330

Wysocki T. Behavioral assessment and intervention in pediatric diabetes. Behav Mod 2006;30:72-92

331

Duff AJA, Latchford GJ. Motivational interviewing for adherence problems in cystic fibrosis. Pediatr Pulmonol 2010;45:211-20

332

Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Pediatr Clin North Am 2011;58:865-85

333

Duff AJA, Latchford GJ. Motivational interviewing for adherence problems in cystic fibrosis. Pediatr Pulmonol 2010;45:211-20

334

Johnson KB, Culpepper D, Scott P, Gordon JS, Harris С The utility of providing automated medication dose reminders to young children on chronic medication. J Telemed Telecare 2011; 17:387-91

335

Davis MA, Quittner AL, Stack CM, Yang MCK. Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with cystic fibrosis. J Pediatr Psychol 2004; 29:259-67

336

Marciel KK, Saiman L, Quittell LM, Dawkins K, Quittner AL. Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives. Pediatr Pulmonol 2010; 45:157-64

337

Quittner AL, Riekert KA, Marciel KK, Kimberg CI, Eakin MN, Zhang J. Adolescent management of CF: gaps in knowledge and treatment skills in the iCARE study. Pediatr Pulmonol 2010;45 (S33):199-200

338

Ramsey В, Dong Q, Yen К, Elborn J. Efficacy and safety of VX-770 in subjects with cystic fibrosis and the G551D-CFTR mutation. Pediatr Pulmonol 2011; 46 (S34):286-7

339

Starck L, Powers SW. Behavioural aspects of nutrition in children with cystic fibrosis. Curr Opin Pulm Med 2005; 11:539-42

340

Stang J, Story M, eds. Guidelines for adolescent nutrition services. Minneapolis, MN: Center for Leadership, Education and Training in Maternal and Child Nutrition, Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, 2005

341

Story M. Nutritional requirements during adolescence. In: McAnarney ER, Kreipe RE, Orr DP Comerci GD, eds. Textbook of adolescent medicine. Philadelphia: WB Saunders, 1992:75-82

342

Forbes GR. Nutrition and growth. In: McAnarney ER, Kreipe RE, Orr DP Comerci GD, eds. Textbook of adolescent medicine. Philadelphia: WB Saunders, 1992: 68-74

343

Stang J, Story M, eds. Guidelines for adolescent nutrition services. Minneapolis, MN: Center for Leadership, Education and Training in Maternal and Child Nutrition, Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, 2005

344

Stang J, Story M, eds. Guidelines for adolescent nutrition services. Minneapolis, MN: Center for Leadership, Education and Training in Maternal and Child Nutrition, Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, 2005

345

Institute of Medicine, Food and Nutrition Board, Committee on the Scientific Evaluation of Dietary Reference Intakes. Dietary reference intakes for vitamin A, vitamin K, arsenic, boron, chromium, copper, iodine, iron, manganese, molybdenum, nickel, silicon, vanadium, and zinc. Washington, DC: National Academy of Sciences, 2001

346

Institute of Medicine, Food and Nutrition Board, Standing Committee on the Scientific Evaluation of Dietary Reference Intakes. Dietary reference intakes for calcium, phosphorus, magnesium, vitamin D, and fluoride. Washington, DC: National Academy Press, 1997

347

Institute of Medicine, Food and Nutrition Board, Standing Committee on the Scientific Evaluation of Dietar Reference Intakes, Panel on Folate Other В Vitamins and Choline, Subcommittee on Upper Reference Levels of Nutrients. Dietary reference intakes for thiamin, riboflavin, niacin, vitamin B6, folate, vitamin B12, pantothenic acid, biotin, and choline; a report. Washington, DC: National Academy Press, 2000

348

Institute of Medicine, Food and Nutrition Board, Standing Committee on the Scientific Evaluation of Dietary Reference Intakes, Subcommittee on Upper Reference Levels of Nutrients and Interpretation and Uses of DRIs, Panel on Dietary Antioxidants and Related Compounds. Dietary reference intakes for vitamin C, vitamin E, selenium, and carotenoids. Washington, DC: National Academy Press, 2000

349

Allen JR, McCauleyJC, Selby AM et al. Differences in resting energy expenditure between male and female children with cystic fibrosis. J Pediatr2003; 142:15-19

350

Reilly JJ, Ralston JM, Paton JY et al. Energy balance during acute respiratory exacerbation in children with cystic fibrosis. Eur Respir J 1999; 13:804-9

351

Fried MD, Durie PR, Tsui LC et al. The cystic fibrosis gene and resting energy expenditure. J Pediatr 1991; 119:913-16

352

Stallings VA, Tomezsko JL, Schall Jl et al. Adolescent development and energy expenditure in females with cystic fibrosis. Clin Nutr 2005; 24:737-45

353

Institute of Medicine, Food and Nutrition Board, Standing Committee on the Scientific Evaluation of Dietary Reference Intakes, Subcommittee on Upper Reference Levels of Nutrients and Interpretation and Uses of DRIs, Panel on Dietary Antioxidants and Related Compounds. Dietary reference intakes for vitamin C, vitamin E, selenium, and carotenoids. Washington, DC: National Academy Press, 2000

354

Barclay A, Allen JR, Blyler E et al. Resting energy expenditure in females with cystic fibrosis: is it affected by puberty? Eur J Clin Nutr 2007;61:1207-12

355

Institute of Medicine, Food and Nutrition Board, Standing Committee on the Scientific Evaluation of Dietary Reference Intakes, Subcommittee on Upper Reference Levels of Nutrients and Interpretation and Uses of DRIs, Panel on Dietary Antioxidants and Related Compounds. Dietary reference intakes for vitamin C, vitamin E, selenium, and carotenoids. Washington, DC: National Academy Press, 2000

356

Magoffin A, Allen JR, McCauley J et al. Longitudinal analysis of resting energy expenditure in patients with cystic fibrosis. J Pediatr 2008; 152:703-8

357

Bines JE, Truby HD, Armstrong DS et al. Energy metabolism in infants with cystic fibrosis. J Pediatr 2002; 140:527-33

358

Stallings VA, Stark LJ, Robinson KA et al. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc 2008; 108:832-9

359

Australasian clinical practice guidelines for nutrition in cystic fibrosis. 2005. Available at: http://www.cysticfibrosis.org.au/pdf/CF_ Nutrition_Guidelines.pdf. Accessed October 2012

360

Borowitz D, Baker RD, Stallings V Consensus report on nutrition for pediatric patients with cystic fibrosis. J Pediatr Gastroenterol Nutr 2002; 35:246-59

361

Trabulsi J, Ittenbach RF, Schall Jl et al. Evaluation of formulas for calculating total energy requirements of preadolescent children with cystic fibrosis. Am J Clin Nutr 2007; 85:144-51

362

Ramsey BW, Farrell PM, Pencharz P Nutritional assessment and management in cystic fibrosis: a consensus report. Am J Clin Nutr 1992;55:108-16

363

Bines JE, Truby HD, Armstrong DS et al. Energy metabolism in infants with cystic fibrosis. J Pediatr 2002; 140:527-33

364

Australasian clinical practice guidelines for nutrition in cystic fibrosis. 2005. Available at: http://www.cysticfibrosis.org.au/pdf/CF_ Nutrition_Guidelines.pdf. Accessed October 2012

365

Sinaasappel M, Stern M, Littlewood J et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002; 1:51-75

366

Sinaasappel M, Stern M, Littlewood J et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002; 1:51-75

367

Poustie VJ, Watling RM, Ashby D et al. Reliability of percentage ideal weight for height. Arch Dis Child 2000;83:183-4

368

Sinaasappel M, Stern M, Littlewood J et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002; 1:51-75

369

Kerem E, Conway S, Elborn S et al. Standards of care for patients with cystic fibrosis: a European consensus J Cyst Fibros 2005; 4:7-26

370

Littlewood JM, Wolfe SP Control of malabsorption in cystic fibrosis. Paediatr Drugs 2000; 2:205-22

371

Walters MP Kelleher J, Gilbert J et al. Clinical monitoring of steatorrhoea in cystic fibrosis. Arch Dis Child 1990;63:99-102

372

Johannesson M, Gottlieb C, Hjelte L. Delayed puberty in girls with cystic fibrosis despite good clinical status. Pediatrics 1997;99:29-34

373

Kerem E, Conway S, Elborn S et al. Standards of care for patients with cystic fibrosis: a European consensus J Cyst Fibros 2005; 4:7-26

374

Aris RM, Merkel PA, Bachrach LK et al. Consensus statement: guide to bone health and disease in cystic fibrosis. J Clin Endocrinol Metab 2005;90:1888-96

375

Sermet-Gaudelus I, Bianchi ML, Garabedian M et al. European cystic fibrosis bone mineralisation guidelines. J Cyst Fibros 2011; 10 Suppl 2: S16-23

376

Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents

377

Moreno LA, Gonzales-Gross M, Kersting M et al. on behalf of the HELENA Study Group. Assessing, understanding and modifying nutritional status, eating habits and physical activity in European adolescents: The HELENA (Healthy Lifestyle in Europe by Nutrition in Adolescence) Study. Public Health Nutr2007; 11:288-99

378

Story M, Stang J. Understanding adolescent eating behaviors. In: Stang J, Story M, eds. Guidelines for adolescent nutrition services. Minneapolis, MN: Center for Leadership, Education and Training in Maternal and Child Nutrition, Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, 2005:9-19

379

Gleason P Suitor С Children's diets in the mid-1990s: dietary intake and its relationship with school meal participation. Special nutrition programs; report no. CN-01-CD1. Alexandria, VA: US Department of Agriculture, Food and Nutrition Service, 2001. Available at: http://www.fns.usda.gov/Ora/menu/Published/CNP/FILES/ChilDiet.pdf. Accessed October 2012

380

Kann L, Kinchen SA, Williams ВТ et al. Youth risk behavior surveillance – United States, 1999. MMWR CDC Surveill Summ 2000; 49 (5):1-32

381

Neumark-Sztainer D, Story M, Perry C, Casey MA. Factors influencing food choices of adolescents: findings from focus-group discussions with adolescents. J Am Diet Assoc 1999;99:929-37

382

Neumark-Sztainer D, Story M, Perry C, Casey MA. Factors influencing food choices of adolescents: findings from focus-group discussions with adolescents. J Am Diet Assoc 1999;99:929-37

383

Kann L, Kinchen SA, Williams ВТ et al. Youth risk behavior surveillance – United States, 1999. MMWR CDC Surveill Summ 2000; 49(5):1-32

384

White H, Wolfe SP Foy J, Morton A, Conway SP Brownlee KB. Nutritional intake and status in children with cystic fibrosis: does age matter? J Ped Gastroenterol Nutr 2007; 44:116-23

385

Rosen DS, The Committee on Adolescence. Clinical report – Identification and management of eating disorders in children and adolescents. Pediatrics 2010; 126:1240-63

386

Kohn M, Booth M. The worldwide epidemic obesity in adolescents. Adolesc Med 2003; 14:1-9

387

Goosens L, Braet C, Bosmans G, Decaluwc V. Loss of control over eating in pre-adolescent youth: the role of attachment and self-esteem. Eat Behav 2011; 12:289-95

388

Agency for Healthcare Research and Quality. Eating disorders sending more Americans to the hospital. AHRQ News and Numbers. April 1, Available at: http://www.ahrq.gov/news/nn/nn040109.htm. Accessed October 2012

389

American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 4th edition, Text Revised. Washington, DC: АРА, 2001

390

Hedebrand J, Bulik CM. Critical appraisal of the provisional DSM-5criteria for anorexia nervosa and an alternative proposal. Int J Eat Disord 2011;44:665-78

391

Bravender T, Bryant-Waugh R, Herzog D et al. Classification of eating disturbances in children and adolescents: proposed changes for the DSM-V. Eur Eat Disorders Rev 2010; 18:79-89

392

Rome ES. Eating disorders in children and adolescents. Curr Probl Pediatr Adolesc Health Care 2012; 42:28-14

393

Boyer T. The development of risk-taking: a multi-perspective review. Dev Rev 2006; 26:291-345

394

Bryant-Waugh R, Lask B. Overview of eating disorders. In: Lask B, Bryant-Waugh R, eds. Eating disorders in childhood and adolescence. 3rd edition. Hove, UK: Routledge, 2007: 35-50

395

Fairburn C, Cooper Z, Shafran R. Cognitive behaviour therapy for eating disorders: a "transdiagnostic" theory and treatment. Behav Res Ther 2003; 41:509-28

396

Abbott J, Conway S, Etherington С et al. Perceived body image and eating behaviour in young adults with cystic fibrosis and their healthy peers. J Behav Med 2000; 23:501-17

397

Truby H, Paxton SJ. Body image and dieting behaviour. Pediatrics 2001; 107:1-7

398

Walters S. Sex differences in weight perception and nutritional behaviour in adults with cystic fibrosis. J Hum Nutr Diet 2001; 14:83-91

399

Patterson JM, Wall M, Berge J, Milla С Gender differences in treatment adherence among youth with cystic fibrosis: development of a new questionnaire. J Cyst Fibros 2008; 7:154-64

400

Sanders MR, Turner KM, Wall CR, Waugh LM, Tully LA. Mealtime behaviour and parent-child interaction: a comparison of children with cystic fibrosis, children with feeding problems and non-clinic controls. J Pediatr Psychol 1997; 22:881-900

401

Sawyer S, Rosier MJ, Phelan PD, Bowes G. The self-image of adolescents with cystic fibrosis. J Adolesc Health 1995; 16:204-8

402

Jelalian E, Mulvihill M, Opiparim L et al. Inadequate oral intake in cystic fibrosis: the role of parent-child interactions. Paper presented at the Florida Conference on Child Health Care psychology, Gainesville, Florida 1995

403

Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents

404

Fairburn C, Cooper Z, Shafran R. Cognitive behaviour therapy for eating disorders: a "transdiagnostic" theory and treatment. Behav Res Ther 2003; 41:509-28

405

Pumariega AJ, Pursell J, Spock A, Jones JD. Eating disorders in adolescents with cystic fibrosis. J Am Acad Child Psychiatry 1986; 25:269-75

406

Raymond NC, Chang PN, Crow SJ et al. Eating disorders in patients with cystic fibrosis. J Adolesc 2000; 23:359-63

407

DS. Anorexia nervosa and cystic fibrosis: a case report. Int J Eat Disord 1988;7:433-7

408

Gilchrist FJ, Lenney W. Distorted body image and anorexia complicating cystic fibrosis in an adolescent. J Cyst Fibros 2008; 7;437-9

409

Pumariega AJ, Pursell J, Spock A, Jones JD. Eating disorders in adolescents with cystic fibrosis. J Am Acad Child Psychiatry 1986; 25:269-75

410

Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents

411

Duff AJ, Wolfe SP Dickson C, Conway SP Brownlee KG. Feeding behaviour problems in children with cystic fibrosis in the UK: prevalence and comparison with healthy controls. J Pediatr Gastroenterol Nutr 2003; 36:443-7

412

Bryon M, Shearer J, Davies H. Eating disorders and disturbances in children and adolescents with cystic fibrosis. Children's Health Care 2008; 37:67-77

413

Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents

414

Abbott J, Morton AM, Musson H et al. Nutritional status, perceived body image and eating behaviours in adults with cystic fibrosis. Clin Nutr 2007; 26:91-9

415

Kastner-Cole D, Palmer CNA, Ogston SA, Mehta A, Mukhopadhyay S. Overweight and obesity in AF508 homozygous cystic fibrosis. J Pediatr2005; 147:402-4

416

Hagan JF, Shaw JS, Duncan PM, eds. Bright futures: guidelines for health supervision of infants, children, and adolescents. 3rd edition. Elk Grove Village, IL: American Academy of Pediatrics, 2008

417

Friend S, Bauer KW, Madden TC, Neumark-Sztainer D. Self-weighing among adolescents: associations with body mass index, body satisfaction, weight control behaviors, and binge eating. J Am Diet Assoc 2011; 112:99-103

418

Pearson N, Williams L, Crawford D, Ball K. Maternal and best friends' influences on meal-skipping behaviours. Br J Nutr 2012; 31:1-7

419

Leverton RM. The paradox of teenage nutrition. J Am Diet Assoc 1968; 53:13-16

420

Michel SH, Maqbool A, Hanna M et al. Nutrition management of pediatric patients who have cystic fibrosis. Pediatr Clin North Am 2009; 56:1123-11

421

Stallings VA, Stark LJ, Robinson KA et al. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc 2008; 108:832-9

422

Australasian clinical practice guidelines for nutrition in cystic fibrosis. 2005. Available at: http://www.cysticfibrosis.org.au/pdf/CF_Nutrition_Guidelines.pdf. Accessed October 2012

423

Sinaasappel M, Stern M, Littlewood J et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002; 1:51-75

424

Kerem E, Conway S, Elborn S et al. Standards of care for patients with cystic fibrosis: a European consensus J Cyst Fibros 2005; 4:7-26

425

White H, Morton AM, Peckham DG et al. Dietary intakes in adult patients with cystic fibrosis – do they achieve guidelines? J Cyst Fibros 2003; 3:1-7

426

Poustie VJ, Russell JE, Watling RM et al. Oral protein energy supplements for children with cystic fibrosis: CALICO multicentre randomized controlled trial. BMJ 2006; 332:632-6

427

Walters MP Kelleher J, Gilbert J et al. Clinical monitoring of steatorrhoea in cystic fibrosis. Arch Dis Child 1990;63:99-102

428

Stallings VA, Starck LJ, Robinson KA, Feranchak AP Quinton Hb. Evidence- based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc 2008; 108:832-9

429

Powers SW, Jones JS, Ferguson KS, Piazza-Waggoner C, Daine C, Acton JD. Randomized clinical trial of behavioural and nutritional treatment to improve energy intake and growth in toddlers and preschoolers with cystic fibrosis. Pediatrics 2005; 116:1442-50

430

Starck LJ, Opipari-Arrigan L, Quittner AL, Bean J, Powers SW. The effects of an intensive behaviour and nutrition intervention compared to standard of care on weight outcomes in CF Pediatr Pulmonol 2011;46:31-5

431

Leonard A, Davis E, Rosenstein BJ et al. Description of a standardized nutrition classification plan and its relation to nutritional outcomes in children with cystic fibrosis. J Pediatr Psychol 2010;35:6-13

432

Giedd JN, Blumenthal J, Jeffries NO et al. Brain development during childhood and adolescence: a longitudinal MRI study. Nat Neurosci 1999;2:861-3

433

Vandenbranden SL, McMullen A, Schechter MS et al. Lung function decline from adolescence to young adulthood in cystic fibrosis. Pediatr Pulmonol 2012;47:135-43

434

Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33

435

Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: developmental issues. Arch Dis Child 2004; 89:938-42

436

Modi AC, Driscoll KA, Montag-Leifling K, Acton JD. Screening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol 2011;46:153-9

437

bannerbanner