
Полная версия:
Долгая жизнь с муковисцидозом
588
Lemonnier L, Cazes MH, Bellis G, et al. Cystic Fibrosis pregnancy in the French patient registry. A 20 year survey. J Cyst Fibros 2013; 12: S36.
589
Tsang A, Moriarty C, Towns S. Contraception, communication and counselling for sexuality and reproductive health in adolescents and young adults with CF. PaediatrRespir Rev 2010; 11: 84-9.
590
Lyon A, Bilton D. Fertility issues in cystic fibrosis. Paediatr Respir Rev 2002; 3: 236-40.
591
Smith H.С Fertility in men with cystic fibrosis assessment, investigations and management. Paediatr Respir Rev 2010; 11: 80-3.
592
Smith H.С Fertility in men with cystic fibrosis assessment, investigations and management. Paediatr Respir Rev 2010; 11: 80-3.
593
Hubert D, PatratC, Guibert J, et al. Results of assisted reproductive technique in men with cystic fibrosis. Hum Reprod 2006; 21: 1232-6.
594
Dugueperoux I, Hubert D, Dominique S, et al. Paternity in men with cystic fibrosis: a retrospective survey in France. J Cyst Fibros 2006; 5: 215-21.
595
Popli K, Bourke S, Stewart J. Fertility issues in men with cystic fibrosis: survey of knowledge and opinion of patients. Fertile Steril2009;91: 1297-8.
596
Popli K, Bourke S, Stewart J. Fertility issues in men with cystic fibrosis: survey of knowledge and opinion of patients. Fertile Steril2009;91: 1297-8.
597
Siegel B, Siegel S. Pregnancy and delivery in a patient with cystic fibrosis of the pancreas. Obstet Gynecol 1960;16:438-40.
598
Grand RJ, Talamo RC, Di Sant'Agnese PA, et al. Pregnancy in cystic fibrosis of the pancreas. JAMA 1966; 195: 117-24.
599
Thorpe-Beeston JG, Madge S, Gyi K, et al. The outcome of pregnancies in women with cystic fibrosis – single centre experience 1998–2011. BJOG 2013; 120:354-61.
600
Edenborough FP, Borgo G, Knoop C, et al. Guidelines for the management of pregnancy in women with cystic fibrosis. J Cyst Fibros 2008; 7: S2-S32.
601
Schechter MS, Quittner AL, Konstan MW, et al. Long-term effects of pregnancy and motherhood on disease outcomes of women with cystic fibrosis. Ann Am ThoracSoc2013; 10:213-9.
602
Ahluwalia M, Hoag JB, Hadeh A, et al. Cystic fibrosis and pregnancy in the modern era: a case control study. J Cyst Fibros 2013; 13:69–73.
603
Gillet D, De Braekeler M, Bellis G, et al. Cystic fibrosis and pregnancy. Report from French data. BJOG 2002; 109:912-18.
604
Gillet D, De Braekeler M, Bellis G, et al. Cystic fibrosis and pregnancy. Report from French data. BJOG 2002; 109:912-18.
605
Burden C, Ion R, Chung Y, et al. Current pregnancy outcomes in women with cystic fibrosis. Eur J Obst Gynecol Reprod Biol 2012; 164: 142-5.
606
Gilljam M, Antoniou M, Shin J,et al. Pregnancy in cystic fibrosis – foetal and maternal outcome. Chest 2000; 118:85–91.
607
Tanser SJ, Hoson, ME, Geddes DM. Case reports of death during pregnancy in patients with cystic fibrosis. Respir Med 2000; 94: 1004-6.
608
Jensen DM, Damm R Moelsted-Pedersen L, et al. Outcomes in type 1 diabetic pregnancies: a nationwide, population-based study. Diabetes Care 2004; 27: 2819-23.
609
Gilljam M, Antoniou M, Shin J,et al. Pregnancy in cystic fibrosis – foetal and maternal outcome. Chest 2000; 118:85–91.
610
Edenborough FP, Borgo G, Knoop C, et al. Guidelines for the management of pregnancy in women with cystic fibrosis. J Cyst Fibros 2008; 7: S2-S32.
611
Lau EMT, Moriarty C, Ogle R, et al. Pregnancy and cystic fibrosis. Paediatr Respir Rev 2010; 11: 90-4.
612
Cole BN, Seltzer MH, Kassabian J, et al. Parenteral nutrition in a pregnant cystic fibrosis patient. J Parent Enter Nutr 1987; 11: 205-7.
613
Edenborough FP, Borgo G, Knoop C, et al. Guidelines for the management of pregnancy in women with cystic fibrosis. J Cyst Fibros 2008; 7: S2-S32.
614
Thakrar MV, Morley K, Lordan JL, et al. Pregnancy after lung and heart-lung transplantation. J Heart Lung Transplant 2014; 33: 593-8.
615
Gyi KM, Hodson ME, Yacoub MY. Pregnancy in cystic fibrosis lung transplant recipients: case series and review. J Cyst Fibros 2006; 5: 171-5.
616
Thakrar MV, Morley K, Lordan JL, et al. Pregnancy after lung and heart-lung transplantation. J Heart Lung Transplant 2014; 33: 593-8.
617
Sawicki GS, Sellers DE, Robinson WM. Associations between illness perceptions and healthrelated quality of life in adults with cystic fibrosis. J Psychosom Res 201170: 161-7.
618
Rolland JS. Chronic illness and the life cycle: a conceptual framework. Fam Process 1987; 26: 203-21.
619
Schwartz L, Droat D. Health-related hindrance of personal goal pursuit and well-being of young adults with CF, pediatric cancer survivors, and peers without a history of chronic illness. J Pediatr Psychol 2009; 34: 954-65.
620
Cruz I, Marciel KK, Quittner AL, et al. Anxiety and depression in cystic fibrosis. Semin Respir Crit Care Med 2009; 30: 569-78.
621
Duff AJ, Abbott J, Cowperthwaite C, et al. Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: a crosssectional study. J Cyst Fibros 2014; 13:745-53.
622
Engel GL. The clinical application of the biopsychosocial model. Am J Psychiatry 1980; 137: 535-44.
623
Onnis L. (1985 original). Corps et contexte. Therapie familiale des troubles psychosomatiques. Translated into French. Paris: Fabe rt; 2009.
624
Cohen F, Lazarus RS. Coping with the stresses of illness. In: Stone GC, Cohen F, Adler NE, et al., eds. Health psychology – A handbook: Theories, applications, and challenges of a psychological approach to the health care system. San Francisco: Jossey-Bass; 1979; 217-54.
625
Rotter JB. Social learning and clinical psychology. Englewood Cliffs, New Jersey: Prentice Hall; 1954.
626
Seligman МЕР. Helplessness: on development, depression and death. San Francisco: W. H. Freeman and Company; 1975.
627
Bandura A. Self-efficacy the exercise of control. San Francisco: W. H Freeman and Company; 1997.
628
Rotter JB. Social learning and clinical psychology. Englewood Cliffs, New Jersey: Prentice Hall; 1954.
629
Seligman МЕР. Helplessness: on development, depression and death. San Francisco: W. H. Freeman and Company; 1975.
630
Bandura A. Self-efficacy the exercise of control. San Francisco: W. H Freeman and Company; 1997.
631
Mishali M, Omer H, Heymann AD. The importance of measuring self-efficacy in patients with diabetes. Fam Pract 2011; 28: 82-7.
632
Quittner AL, Barker DH, Snell C, et al. Prevalence and impact of depression in cystic fibrosis. Curr Opin Pulm Med 2008; 14: 582-8.
633
Cramm JM, Strating MM, Roebroeck ME, et al. The importance of general self-efficacy for the quality of life of adolescents with chronic conditions. Soc Indie Res 2013; 113:551-61.
634
Grieve AJ, Tluczek A, Racine-Gilles CN, et al. Associations between academic achievement and psychosocial variables in adolescents with cystic fibrosis. J Sch Health 2011; 81: 713-20.
635
Lazarus R, Folkman S. Stress, appraisal and coping. New York: Springer; 1984.
636
Zimmer-Gembeck MJ, Skinner EA. The development of coping across childhood and adolescence: an integrative review and critique of research. Int J Behav Dev2011;35: 1-17.
637
Graue M, Wentzel-Larsen T, Bru E. The coping styles of adolescents with type 1 diabetes are associated with degree of metabolic control. Diabetes Care 2004; 27: 1313-7.
638
Anie KA, Steptoe A, Bevan DH. Sickle cell disease: pain, coping and quality of life in a study of adults in UK. Br J Health Psychol 2002; 7(Pt3): 331-44.
639
Abbott J, Hart A, Morton A, et al. Health-related quality of life in adults with cystic fibrosis: the role of coping. J Psychosom Res 2008; 64: 149-57.
640
Taylor JL, Smith PJ, Babyak A, et al. Coping and quality of life in patients awaiting lung transplantation. J Psychosomatic Res 2008; 65: 71-9.
641
Abbott J, Dodd M, Gee L, et al. Ways of coping with cystic fibrosis: implications for treatment adherence. Disabil Rehabil 2001; 23:315-24.
642
Buytendijk FJJ (1948 original). De la douleur. Translated into French. Paris: PUF; 1951.
643
Vannotti M, Celis-Gennart M. L'experience plurielle de la maladie chronique. Maladie pulmonale etfamille. In: Corps ettherapie familiale. Cahiers critiques de therapie familiale et de pratique de reseaux. Bruxelles De Boeck-Universite; 1999; 113-38.
644
Paterson B.The shifting perspectives model of chronic illness. J Nurs Scholarsh 2001; 33: 21-6.
645
Strauss GD, Wellish DK. Psychological adaptation in older CF patients. J Chronic Dis 1981; 34: 141-6.
646
Conway SP, Pond MN, Hamnet T, et al. Compliance with treatment in adult patients with CF. Thorax 1996;51:29–33.
647
Dziuban EJ, Saab-Abazeed L, Chaudhry SR, et al. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010; 45: 450-8.
648
Sawicki GS, Heller KS, Demars N, et al. Motivating adherence among adolescents with cystic fibrosis: Youth and parent perspectives. Pediatr Pulmonol 2015; 50: 127-36.
649
Quittner AL, Zhang J, Marynchenko M, et al. Pulmonary medication adherence and healthcare use in cystic fibrosis. Chest 2014; 146:142-51.
650
Celis-Gennart M, Vannotti M. Le syndrome douloureux chronique a la lumiere de I'histoire familiale. In Malades et families. Penser la souffrance dans une perspective de la complexite. Geneve: Ed. Medecine et Hygiene; 1998; 103-26.
651
Buytendijk FJJ (1948 original). De la douleur. Translated into French. Paris: PUF; 1951.
652
Clisby N, Shaw S, Cormack M. Psychological impact of working with patients with cystic fibrosis at end-of-life, pre-transplant stage. Palliat Support Care 2013; 11: 111-21.
653
Sands D, Repetto T Dupont LJ, et al. End of life care for patients with cystic fibrosis. J Cyst Fibros 2011; 10Suppl2:S37-44.
654
Chapman E, Landy A, Lyon A, et al. End of life care for adult cystic fibrosis patients: facilitating a good enough death. J Cyst Fibros 2005; 4: 249-57.
655
Collins S, Reynolds F. How do adults with cystic fibrosis cope following a diagnosis of diabetes? J Adv Nurs 2008; 64: 478-87.
656
Quibell R, Booth Z, Doe S, et al. An integrated model of specialist palliative care (SPC) for cystic fibrosis (CF). BMJ Support Palliat Care2014;4Suppl1: A13.
657
Braithwaite M, Philip J, Tranberg H, et al. End of life care in CF: patients, families and staff experiences and unmet needs. J Cyst Fibros 2011; 10:253-7.