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Return to Wales after ten days, feeling I can walk further, but by the end of July my hands, knuckles and arms have started to hurt. What a state! I can just about manage to go to work, but have to sit down. I even find washing my hair and taking a bath wipes my energy out. The doctor tries another medication to help with the pain, but I’m sick again. Worse than ever. That evening we hold a private viewing for the opening of our new studio. Julian has achieved miracles; it looks so professional. I’ve been no help, nothing but a burden.
By September, thank goodness, I feel pretty much back to normal. Like a fairy has waved her magic wand. The doctor still detects a definite weakness in my legs, but is not sending me for tests. I put the whole illness to the back of my mind.
In October, I start teaching printmaking on a degree course one day a week. A great job, but it’s a 90-minute drive away. Crossing the Welsh hills in a clapped-out car, through rain, sleet and snow, is certainly taxing. Feel like I’ve done a day’s work before I’ve even started.
3 (#ulink_71777441-db26-5a90-a8db-9c26b74c7e5f)
‘Guess who’s coming to stay’ (#ulink_71777441-db26-5a90-a8db-9c26b74c7e5f)
November 1988. Felt queasy. I was pregnant. You’re never too sure if it’ll happen straight away, but it did; aged 26, we thought it a pretty good time to start thinking about a family. I organised a surprise meal for Julian (who had absolutely no idea I’d got pregnant that quickly); after the food, I handed him a gift. He unwrapped the nappy pins and pink fluffy pig, and the card saying, ‘Guess who’s coming to stay July ’89.’ I was on the edge of my seat anticipating his reaction, but needn’t have worried. Although shocked, he was ecstatic.
Everyone was thrilled with our news. Mum said, ‘It’ll put a spring in Dad’s step and a twinkle in his eye.’ My pregnancy kicked in and I felt surprisingly well; Julian and I looked weekly in the baby book at the stages of babies’ growth, attended Mabel’s NCT classes and had all the attentiveness that time allows for first babies. We began to nest-build, making alterations at the lodge.
One evening while watching TV, what a shock! There was one of my pictures, All Set for Tea, on the set of a BBC sitcom. That was quite fun, but on the negative side interest rates were cripplingly high. I suppose the first thing you stop buying when times are tough is artwork!
At eight months pregnant, home alone one summer’s day, I heard a knock at my back door. I assumed it was my friend Stella, but instead it was the eccentric farmer who lived with his long-suffering wife on a smallholding, down a muddy track nearby.
Driving past our lodge on his old grey tractor, which he did numerous times a day, he’d wave, and if I was in the garden I’d wave back. They were quite a couple of characters, he and his wife. The tractor was their only form of transport. He’d take his wife shopping, with her clinging to the back of the tractor for dear life, wearing her oversized man’s coat tied together with baler twine.
Anyhow, on that particular June day, stood at my back door, he wanted to know if I’d like some new potatoes.
‘Yes, please,’ I said.
He was very hard to understand, having such a strong Welsh accent and more spaces in his mouth than teeth.
‘I hear you’re going to be a father! Do you want a boy or a girl?’ he shouted, with peculiar incorrect use of gender.
He started to feel my tummy. This all seemed friendly enough, but then he lifted my shirt to grab hold of my trousers and see how tight they were, like he’d never seen a pregnant woman before. He mentioned my belly button, pulling my trousers further for a better look.
I said, ‘Oh, yes, all normal, thank you very much,’ pulling away.
I tried to give him the benefit of the doubt and remain civil. But before I knew it, he’d lifted up my T-shirt and squeezed the end of my tit!
Why did I let him! God knows. It happened so fast. He was treating me like one of his cows. I tried not to be rude, but had had enough of these shenanigans. He must’ve realised I wasn’t going to be pawed any longer, and just marched back to his tractor.
Once he’d gone, I felt a real fool. When I relayed the story to Julian, he thought I should’ve slapped his hand or face. Looking back, I agree, but the farmer was offering potatoes, and was maybe not the sharpest knife in the drawer! After that experience I decided I definitely wasn’t going to wave to him any more, in case he thought I was encouraging him.
I didn’t know at the time, but he was notorious for this sort of thing and really needed stopping. The trouble is, when you’re pregnant, people feel at liberty to touch your bump, so I felt at a disadvantage.
A week later, getting up late having had little sleep (a combination of heartburn and the baby kicking most of the night), I decided to have a nice, relaxing bath. Luckily I locked the back door. Had the radio on, was enjoying soaking myself, watching the baby move in the water.
I heard marching on the gravel, followed by thumping on the back door. I’d been splashing around, so whoever was standing literally just two feet away knew exactly where I was. I lay as still as can be, my heart beating ten to the dozen, and the handle of the backdoor slowly creaked. Someone was trying to get in – not just pushing the handle once, but rattling it repeatedly.
Livid, I jumped from the bath (allowing for me being eight months pregnant), grabbed my dressing gown and, dripping wet, yanked open the back door ready to have a full-on confrontation with whoever was standing there.
I couldn’t believe my eyes – it was the farmer! Arm outstretched, offering me some more bloody potatoes.
‘Did I wake you?’ he asked.
‘No. I was in the bath. Catching cold now.’
‘Are you OK?’ he bellowed.
‘Yes, but I must go,’ I replied.
Leaning forward, he grabbed hold of my hand, clutching my dressing gown, saying he’d look after me!
Bugger that, I thought. No bloody way! I just slammed the door in his face, re-locking it and sliding the bolts.
I waited for the tractor to start up again, but reckoned he was on foot. Felt quite upset. He seemed to come when Julian was at work. Shut all the windows, rechecked the locks, got back in the cold bath and washed my hair.
We were such easy targets, living in a ground-floor lodge, but, as it was such hot weather, I liked opening the windows. From then on, I was locking everything. I decided that if he came round again, I’d be extremely rude. Eventually he’d get the idea. He never did call again; it’d done the trick. Quite unsettling, even so.
The rest of the long hot July passed by peacefully and the days dragged into August. My due date came and went, the midwife becoming a familiar face. Unfortunately reached 14 days overdue, so I was induced, even then enduring 17 hours of labour. Why do they call it labour? Mmmm. The doctor arrived, saying as he bustled into the room that he needed size 7 gloves and size 9 wellies – not sure why he needed the wellies, but that’s what he said! I smiled to myself. Anything that can make a woman laugh during labour is a miracle. Finally, baby Josh was delivered with the help of Simpson’s forceps, along with accompanying epidural.
I remember what seemed like this enormous baby was dumped, plop, on my belly. Amazed at this giant wriggling mass. Relieved it was over at last, tearful, but mainly exhausted from the ordeal and lack of sleep.
Two nurses tried to get me into a wheelchair – what a joke! Numb from the epidural, I just crumpled on the floor. I was placed on a trolley, then wheeled down the corridors, Josh wrapped safely in my arms. It felt like the most wonderful journey ever. They said he was perfect; both Julian and I agreed with moist eyes. Rolled into bed, thump, like a piece of lard. I couldn’t turn or move. Julian kissed me goodbye.
Tried to get some sleep, but hopeless in the noisy ward. Lights on, lights off, babies crying, trying to get some sensations back in my legs. Stared at Josh, his black hair, blue eyes; strained, trying to touch him, but couldn’t quite reach. I loved him so much already.
On the same day Josh was born, another lady had her baby. She was visited by the doctors, who pulled the curtains round her bed. The words ‘Down’s syndrome’ were causing a stir on the ward. Everyone felt great sympathy for the couple. Just made me even more grateful that Josh was so perfect.
4 (#ulink_16f4beb9-f621-5868-b182-8a5903839391)
Strange things dawning on me slowly (#ulink_16f4beb9-f621-5868-b182-8a5903839391)
A week after coming home, I noticed a few strange things; I couldn’t feel the distinction between the cold floor tiles and the warmth of the carpet. Taking a bath, I might have noticed if the water had been boiling hot, but generally I couldn’t distinguish between warm or hot. I noted these things, but imagined they were all just the after-effects of my epidural. After all, I’d just endured a long birth, was breastfeeding round the clock and had a new baby to look after, so the last thing to be concerned about was funny feet. Could’ve been anything, but it was another sign, and quite common (apparently) for MS patients to be well during pregnancy, then afterwards display problems.
When Josh was five months old, I developed more unusual numb sensations, which doctors thought were due to a disc pressing on my spine, hence why both feet felt identically numb. They suggested not lifting Josh whenever possible. The numbness developed into pins and needles in my feet, as if I’d been walking in the snow. The doctors repeated the same tests and seemed slightly more concerned, sending me for blood tests and an x-ray, and suggested I see a physiotherapist. So I started weekly visits (a story in itself), which didn’t do much good, but hopefully no harm. By April things had improved again. These strange sensations appeared, then just went away. It was infuriating at the time, but once gone I forgot all about them, and didn’t link any of them together.
October 1990. Josh aged one. I was asked back to my old teaching job, so three days a week I started getting up at 6.45 a.m. for the long drive across Wales and over the border into England.
As for when I first noticed any differences between Josh and other babies, well, a few bells began not necessarily to ‘ring’ but to ‘jingle’ when he was seven months old. My friend’s little girl, who’s three weeks older, was moving and generally more advanced, but I put this mainly down to the difference in sexes.
On Josh’s first birthday, we took him to the zoo, believing all kids loved animals. Not the case. He seemed quite uninterested! When an elephant stood right in front of him, he looked away; same with the monkeys, and when they fed the sea lions he more or less ignored them. This really tried our patience, having made the effort; Josh showed more interest in the rubbish bin. It was very hard to comprehend. Even slightly ungrateful.
That winter he suffered constantly from bronchitis and ear infections. He had a really bad reaction to the MMR injection – I’d never seen him cry with such utter despair – and seemed to slip through the net with his health checks; his 18-month test was late. His delayed speech was just put down to all his infections.
At Josh’s two-year test, a different doctor could see no problems with his hearing; he looked attentive enough, although he had little speech. So I was to bring him back in eight weeks. Again, I didn’t feel worried.
But he had started presenting a few phobias. For instance, he was very frightened in car washes, even being near a car wash. Visiting another parent’s house, he wanted a wee, but wouldn’t go in their bathroom. It was the indoor plants; the spikier the leaves, the worse the fear. Even little spider plants caused him anxiety. I had no comprehension of why he was upset. These things just made life harder for me. I wasn’t given a handbook on how to behave with an undiagnosed autistic son.
He was still suffering with his ear infections. We couldn’t let him continue to suffer month after month, so he had an operation for grommets and his adenoids were removed.
5 (#ulink_de3851e5-b6cf-5a59-8f73-560829040d1b)
New home (#ulink_de3851e5-b6cf-5a59-8f73-560829040d1b)
Julian’s mum suggested being enumerators for the 1991 census. She was an electoral registrar and said it paid well and was quite easy, so we both signed up. The difference, we realised later (too late), was that she lived in a built-up neighbourhood, where your area may be a couple of streets, but we lived in the back of beyond and therefore had large chunks of countryside to cover!
Time-wise there was no comparison. A rural area took days and days to complete, with greater distances to travel, and forests, streams, fields and unmade roads to negotiate. But every cloud has a silver lining, and perhaps there was a good reason why we took on this job, as we found out later.
The weather couldn’t have been worse, as it always seemed to be pouring with rain. There were funny farmyards with not-so-funny farm dogs tearing at the car tyres, and just as hostile geese. We were in and out of the car, up and down the same road, trying to make head or tail of the maps, getting frightened to death by Alsatian dogs that hid behind walls, ready to pounce. Had to have a new tyre replaced on the car (from bouncing along farm tracks), then a week later the exhaust pipe dropped off. When we were delivering forms one Sunday, a lady confronted me at her door, complaining that I was disturbing her and working on the Sabbath! I slunk back the following day.
But Fate had dealt us a good turn. We’d visited many villages and hamlets during this census. One day, coming across a quaint place with an ancient church, almshouses and a pub, we both commented on how it would be an idyllic place to live. A few months later, we noticed in the paper a house in this village coming up for auction. We bid for it, and so become owners of our first home.
On a negative note, and making us even keener to move, we were burgled twice at our little lodge within a three-month period. Both times I’d only popped out for a while, which was pretty scary. The second time they smashed their way in over the bath, taking my grandmother clock and other irreplaceable heirlooms. My dad made me a replacement, using the mechanism from a clock he was given for his 18th birthday (in 1938). Although I miss the original, this one is just as special, if not more so, made especially for me.
On top of the burglaries, I was worried over a recall about Josh’s talking, or lack of it. But the doctor said that he was better, there was no panic, and to come back in three months. Around this time I discovered I was pregnant, and struggled on over the next few months, feeling queasy, while Julian completed a Norwegian printing order. He bought some new printing equipment, and worked every night till 2 a.m., printing, cleaning, signing and numbering the editions, but got the prints finished on time.
The weeks passed by, bills mounted up and, worryingly, there was no money in sight from Norway. In April, my teaching job was advertised due to new contracts, so I had to reapply for it. I received an interview, on my due date! So I rang, informing the college I might not be able to attend on that day, as I might be in hospital having a baby, or having just had one. It wasn’t as though the college was ten minutes down the road; it was an hour and a half away. The assistant on the other end of the phone kindly informed me that it was my own fault. I shouldn’t be pregnant. Rather upsetting!
I made a few phone calls, eventually having to go to the principal. Luckily he changed the date to the beginning of September, a month after my due date. None of this did me any favours with my immediate section leader, as I went over her head and made her look very foolish. She never forgave me.
To top it all the Norwegian publishing company went bust! Which, ironically, later led to a new long-running contract for Julian with a large art publisher in London, who’d also suffered a loss from the firm. However, I don’t think we felt very cheery at the time, not getting any recompense for all that hard work. We lost a lot of money.
It was a troubling few months. But among all this turmoil, in May we moved into our new cottage, which we’d lovingly restored over the previous year. The church clock opposite, chiming every 15 minutes, kept us both awake for the first few nights. But it was a super home.
6 (#ulink_4df7e6d7-8ceb-568e-869a-7096957bbf33)
New baby (#ulink_4df7e6d7-8ceb-568e-869a-7096957bbf33)
August 1992. Our new baby boy arrived in two hours, a slightly smaller version of Josh: dark eyes, and with beautiful long eyelashes. He was alert from the first moment, feeding straight away, no messing around. I felt blessed with two wonderful children.
Harvey was four weeks old when I drove the 90-minute journey for my interview, leaving him with relatives close by so I could rush off and breastfeed him at lunchtime. I had mastitis, was feeling tired, suffering with a headache (I’d had it for days), and the interview panel were sat in front of a dazzling window, so I could hardly see; it hurt my eyes with the glare behind them.
After all that, I didn’t get the job. I’m sure they hadn’t appreciated me ‘altering’ their interview schedule by a month, and perhaps thought employing someone without babies and sore breasts was a safer option. How deflating – all that effort for nothing. Meanwhile, my headache developed into optic neuritis, leaving me with blurred vision for seven weeks.
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